THE PURDUE EARLY PHENOTYPE STUDY (PEPS)
NOW RECRUITING!
Purdue Early Phenotype Survey
Working with families across the country, the Neurodevelopmental Family Lab has been collecting information on the early development of children with rare neurogenetic syndromes. This longitudinal online survey asks families with children with Angelman syndrome, fragile x syndrome, Prader-Willi syndrome, and Williams syndrome about their child's development and their experiences as a parent.
PEPS is now entering its fourth year, and over 200 families have completed surveys. Some members of the study have been diagnosed with rare genetic syndromes, whereas others are members of the community without any known diagnoses. By partnering with families, our goal is to better understand (1) typical developmental strengths and needs of children with rare disorders and (2) early markers and pathways of risk for outcomes such as autism, anxiety, and attention problems.
We are currently recruiting infants and toddlers with Angelman, fragile x, Prader Willi, and Williams syndromes who are 4 years old or younger at the time of enrollment. Families must live in the United States and speak primarily English at home.
To learn more and determine eligibility, please email us at nddfamilylab@purdue.edu. Families are compensated for their time.
PEPS is now entering its fourth year, and over 200 families have completed surveys. Some members of the study have been diagnosed with rare genetic syndromes, whereas others are members of the community without any known diagnoses. By partnering with families, our goal is to better understand (1) typical developmental strengths and needs of children with rare disorders and (2) early markers and pathways of risk for outcomes such as autism, anxiety, and attention problems.
We are currently recruiting infants and toddlers with Angelman, fragile x, Prader Willi, and Williams syndromes who are 4 years old or younger at the time of enrollment. Families must live in the United States and speak primarily English at home.
To learn more and determine eligibility, please email us at nddfamilylab@purdue.edu. Families are compensated for their time.
| Early Phenotype Survey Brochure |
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Neurodevelopmental Family Lab @Purdue University
Psychological Sciences | 703 3rd Street, West Lafayette, IN
phone 765.494.3667 | e-mail nddfamilylab@purdue.edu | web http://nddfamilylab.weebly.com
Resources | Join our Team | Big Ideas Challenge | PANDABox | Infant Development Study | Early Phenotype Survey | Brain and Behavior Study
Neurodevelopmental Family Lab @Purdue University
Psychological Sciences | 703 3rd Street, West Lafayette, IN
phone 765.494.3667 | e-mail nddfamilylab@purdue.edu | web http://nddfamilylab.weebly.com
